The papers listed below are all from our team’s research about asking questions and using question lists.
You can contact us: Dr Heather Shepherd, Dr Marguerite Tracy

Question asking and the Ask Share Know questions 

  1. Shepherd, H. L., A. Barratt, L. J. Trevena, K. McGeechan, K. Carey, R. M. Epstein, P. N. Butow, C. B. Del Mar, V. Entwistle and M. H. N. Tattersall (2011). “Three questions that patients can ask to improve the quality of information physicians give about treatment options: A cross-over trial.” Patient Education and Counseling 84(3): 379-385.
  2. Shepherd, H. L., A. Barratt, A. Jones, D. Bateson, K. Carey, L. J. Trevena, K. McGeechan, CB. Del Mar, P. N. Butow and R. M. Epstein (2016). Can consumers learn to ask three questions to improve shared decision making? A feasibility study of the ASK (AskShareKnow) Patient–Clinician Communication Model® intervention in a primary healthcare setting. Health Expectations. 19(5) 1160-8
  3. MC Tracy, HL Shepherd, Patel P, Trevena LJ Spoilt for choice: An environmental scan of question prompt lists available via Google Journal of Medical Internet Research (2020) https://doi.org/10.1016/j.pec.2019.11.023
  4. Marguerite C. Tracy, Heather L Shepherd, Rowena G. Ivers, Meghan Mann, Lucia Chiappini, Lyndal J. Trevena What patients want to ask their doctors: Data analysis from Question Builder, an online question prompt list tool. Patient Education and Counseling (2020) 103(5)937-943 https://doi.org/10.1016/j.pec.2019.11.023
  5. Tracy MC, Muscat DM, Shepherd HL, Trevena LJ. Doctors’ Attitudes to Patient Question Asking, Patient-Generated Question Lists, and Question Prompt Lists: A Qualitative Study. Medical Decision Making. August 2021. doi:10.1177/0272989X211029579
  6. Tracy, M, Ayre, J, Mac, O, Copp, T, Trevena, EL, Shepherd, H. (2022) Question prompt lists and endorsement of question-asking support patients to get the information they seek—a longitudinal qualitative study. Health Expect. 2022; 1- 12. doi:10.1111/hex.13509

Measuring Ask Share Know impact 

  1. DM Muscat, HL Shepherd, L Hay, A Shivarev, B Patel, S McKinn, Carissa Bonner, Kirsten McCaffery, Jesse Jansen. (2018) Discussions about evidence and preferences in real-life general practice consultations with older patients. Patient Education and Counseling. Available online 3 December 2018

Adult Education Health Literacy and Numeracy 

  1. Muscat, D. M., S. Morony, H. L. Shepherd, S. K. Smith, H. M. Dhillon, L. Trevena, A. Hayen, K. Luxford, D. Nutbeam and K. McCaffery (2015). “Development and field testing of a consumer shared decision-making training program for adults with low literacy.” Patient Education and Counseling 98(10): 1180-1188.
  2. Muscat, D. M., S. Smith, H. M. Dhillon, S. Morony, E. L. Davis, K. Luxford, H. L. Shepherd, A. Hayen, J. Comings and D. Nutbeam (2016). “Incorporating health literacy in education for socially disadvantaged adults: an Australian feasibility study.” International journal for equity in health 15(1): 84.
  3. Muscat, D. M., H. L. Shepherd, S. Morony, S. K. Smith, H. M. Dhillon, L. Trevena, A. Hayen, K. Luxford, D. Nutbeam and K. McCaffery (2016). “Can adults with low literacy understand shared decision making questions? A qualitative investigation.” Patient Education and Counseling 99(11): 1796-1802.
  4. Muscat, D. M., Morony S, Smith SK, Shepherd HL, Dhillon HM, Hayen A, Trevena L, Luxford K, Nutbeam D, McCaffery KJ. (2017). Qualitative insights into the experience of teaching shared decision making within adult education health literacy programmes for lower-literacy learners. Health Expectations 20(6): 1393-1400.
  5. Muscat, D. M., Morony, S., Trevena, L., Hayen, A., Shepherd, H. L., Smith, S. K., Dhillon, H. M., Luxford, K., Nutbeam, D., & McCaffery, K. J. (2019). Skills for Shared Decision-Making: Evaluation of a Health Literacy Program for Consumers with Lower Literacy Levels. Health literacy research and practice, 3(3 Suppl), S58–S74. https://doi.org/10.3928/24748307-20190408-02
  6. Kirsten J McCaffery, Suzanne Morony, Danielle M Muscat, Andrew Hayen, Heather L Shepherd, Haryana M Dhillon, Sian K Smith, Erin Cvejic, Wedyan Meshreky, Karen Luxford; Don Nutbeam. (2019) Evaluation of an Australian Health Literacy Program Delivered in Adult Education Settings HLRP: Health Literacy Research and Practice. 2019;3(3): S42-S57 https://doi.org/10.3928/24748307-20190402-01

Shared decision making in Australia

  1. Tracy, M. C., Thompson, R., Muscat, D. M., Bonner, C., Hoffmann, T., McCaffery, K., & Shepherd, H. L. (2022). Implementing shared decision-making in Australia. Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen, 171, 15–21. https://doi.org/10.1016/j.zefq.2022.04.002
  2. Lyndal Trevena, Heather L Shepherd, Carissa Bonner, Jesse Jansen, Anne E Cust, Julie Leask, Narelle Shadbolt, Chris Del Mar, Kirsten McCaffery, Tammy Hoffmann. (2017) Shared Decision Making in Australia in 2017. Zeitschrift fur Arztliche Fortbildung und Qualitatssicherung Vol 123–124, 17-20.
  3. McCaffery, K. J., S. Smith, H. L. Shepherd, M. Sze, H. Dhillon, J. Jansen, I. Juraskova, P. N. Butow, L. Trevena, K. Carey, M. H. N. Tattersall and A. Barratt (2011). “Shared decision making in Australia in 2011.” Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 105(4): 234-239.